Showcasing EATRIS, BBMRI, and ELIXIR tools & resources

Date: Tuesday 13th - Wednesday 14th June 2023, lunch to lunch. 

Location: Paushuize, Kromme Nieuwegracht 49, Utrecht & online (hybrid meeting) 

Introduction 

The joint life-sciences research infrastructures (RIs, e.g., EATRIS, BBMRI and ELIXIR) develop and provide services for specific research communities helping to solve bottlenecks and push forward the frontiers of scientific disciplines. In practice we see that the user community is often unaware or insufficiently aware of the services available to them. On the other hand, RIs developing the tools and resources need to stay in touch with a broad range of potential users to get a clear picture of their actual needs.  

In the Netherlands, Health-RI aims to be a connector for the national research communities and institutes to get/be optimally aligned with the new developments in the European Research Infrastructures. This workshop is dedicated to showcase several resources developed in Research Infrastructures: context, get feedback on those resources from foreseen users and hence help bridge the (perceived) gap between research infrastructures and the broader user community. 

Target audience 

The workshop is targeted at (coordinators of) data support professionals who want to get acquainted with tools and resources of the Life Science Research Infrastructures that are available for them and the researchers they support. In addition, they will have the opportunity to provide feedback about the usability of these tools and resources. 

Agenda

DAY 1 June 13, 2023, 12:00-17.00 CEST

12:00 - 13:00Arrival and lunch for f2f participants(12:30 Zoom room open for virtual attendants)13:00 - 13:10Welcome on behalf of Health-RIJan-Willem Boiten13:00 - 13:35Introduction: Reflections about the role of RIs in accelerating researchNiklas Blomberg - director ELIXIR and coordinator EOSC-Life13:35 - 14:15Theme: Data stewardship Skills FAIR Data stewardship training & capacity buildingCelia van Gelder - Health-RI/ELIXIR-NL Data stewardship Community buildingMijke Jetten - Health-RI/ELIXIR-NL14:15 - 15:05Theme: FAIR data management & implementation (part 1)  Data Stewardship Wizard (DSW)Espen Åberg - ELIXIR-Norway RDMkit – The Research Data Management toolkit for Life SciencesMunazah Andrabi - ELIXIR-UK15:05 - 15:30BREAK15:30 - 17:00Theme: FAIR data management & implementation (part 2)  The FAIR Cookbook: a resource for and by FAIR doers in the life sciencesTooba Abbassi-Daloii - Maastricht University FAIRsharing - A curated, informative, and educational resource on data and metadata standards, inter-related to databases and data policiesAllyson Lister - FAIRsharing Content & Community Lead, University of Oxford The MDR: A Metadata Repository for Clinical ResearchSteve Canham - ECRIN Wrap up session17:00DRINKS

DAY 2 June 14, 2023, 9:30-13:00 CEST

9:00 - 9:30Welcome; coffee and tea(9:15 Zoom room open for virtual attendants)9:30 - 10:10Keynote lecture: FAIR patient registries and omics data for modelling disease trajectoriesPeter-Bram ‘t Hoen – Radboudumc10:10 - 11:10Theme: Sensitive data sharing Toolbox for sensitive data sharingChristian Ohmann - ECRIN The Netherlands ELSI service deskMiriam Beusink - Health-RI BBMRI ELSI ServiceMichaela Mayrhofer - BBMRI-ERIC11:10 - 11:30BREAK11:30 - 12:50Theme:  Sharing high-quality biosamples and patient engagement BBMRI-ERIC Quality Management Services and involvement in EU projectsMaike Tauchert - BBMRI-ERIC & EPND project Dutch biobanking standard: Towards harmonized & evidence-based protocolsHilde Brouwers – Health-RI, Erasmus MC Biosample findability - Catalogue/Directory/local UMCG portalMarije van der Geest – UMCG Patient engagement in Translational Research – why, how, and whenFlorence Bietrix - EATRIS-ERIC13:00Closure Packed lunch / Lunch

Registration or more information can be found Here.